In order to properly monitor XDP patients throughout the Panay region, we work with a team of dedicated community advocates, who oversee patients and spread awareness for XDP within their assigned areas. Going to urban, rural, and even hard-to-reach communities, they serve as our eyes and ears, a vital link that connects our healthcare workers with our patients no matter the distance. The program is supported by the Collaborative Center for XDP at the Massachussetts General Hospital, allowing our advocates to continually do home visits, facilitate patient attendance, and monitor symptoms and well-being.