COMMUNITY SERVICES

XDP educational awareness

We strive to raise awareness for XDP by reaching out to communities, especially those in hard-to-reach villages, to debunk the stigmas and myths about the disease. For many generations, the disorder was considered a curse, with many people hiding patients out of fear and shame. Today, the SCF works with its Community Advocates to explain the science behind XDP. We recognize, however, that genetics, as a biomedical concept, is non-existent to some people, so our job is to make them understand what XDP truly is.

Through the help of our volunteers and advocates, we were able to launch the following awareness campaigns and look forward to more:
• Lay forums: Tapping local health workers, we can actively find new cases within the region.
• Youth volunteer initiatives: The youth have been vital in translating medical jargons into simpler terms to help to spread the word on XDP and the SCF.
• Radio, TV and Podcasts: Through media channels, we can reach far-flung areas too difficult to visit, speaking to the audience in the local Hiligaynon dialect. The initiative has been successful, seeing an increase in geneting counseling consultations.

    Patient Services
    Abegail Aguil
    +63 9088843135
    Brain Donation
    Cara Cerado
    +63 9171828022
    Research
    Niecy Grace Ganza
    +63 9999974920
    Clinic Services
    Liezel Mae Celoso
    +63 9171053950
    Roxas Office
    Loradel Durana
    +63 9178414234
    ROXAS CLINIC
    The Sunshine Care Foundation Inc.,
    2F The Health Centrum, Teodorica Avenue,
    Banica, Roxas City, Philippines
    ILOILO CLINIC
    The Sunshine Care Foundation Inc.,
    Metro Iloilo and Medical Center,
    Metropolis Avenue, Iloilo City, Philippines

    ROXAS CLINIC
    The Sunshine Care Foundation Inc., 2F
    The Health Centrum, Teodorica Avenue, Banica, Roxas City, Philippines

    ILOILO CLINIC
    The Sunshine Care Foundation Inc.,
    Metro Iloilo and Medical Center, Metropolis Avenue, Iloilo City, Philippines

    Roxas City +63 917 8414234
    Monday-Friday, by appointment only
    contact@sunshinecarefoundation.org

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