We find HOPE a HOME.
We are a non-profit organization focused on providing clinical care and aid to patients affected with XDP. We also fund and promote scientific research on the brain, on understanding other neurodegenerative diseases, and finding the cure through the Collaborative Center for XDP (CCXDP) at Massachusetts General Hospital.
Dr. Patrick Acuña, Vice President of SCF, is also an XDP patient, and he is the reason that the foundation was established, with efforts not only focusing on finding a cure but also optimizing patient- centered care clinics.
For over three years, the foundation have grown from doing field research to organizing medical missions, giving counseling to patients and their families, providing livelihood programs as well as giving regular medical care to our XDP patients. To date, we have about 200 patients and we are still actively reaching out to those who might have the disease.
To find the CURE for X-Linked Dystonia Parkinsonism.
To CARE for patients and their families with XDP.
A patient advocacy and scientific research organization, we seek to find the cure for XDP by funding rigorous and effective scientific and medical research in the Philippines and around the world.
We also seek to elevate the patients’ quality of life by providing patients and their families with medical care, economic assistance and compassionate community support.