Brain banking has played a crucial role in understanding XDP. In order to better define how this rare disease affects patients, the CCXDP, in collaboration with our foundation, has created a brain bank in the Panay Island to serve as a vital tissue resource. Housed here are the preserved postmortem brains of more than 35 patients, who have willingly consented to donate this organ for scientific study. Seeing the success of this initiative, more XDP patients have volunteered to donate their brains once they have passed in order that the future generation will no longer have to face this disease.