After getting Deep Brain Surgery (DBS) to treat his dystonia, Atty. JP Anthony Cuñada got a new lease on life, determined to join the fight against XDP. DBS surgery is very costly, and Atty. JP was fortunate enough to have family and friends that helped raise funds for this operation. This experience showed him that there is a dire lack of funding and awareness for this rare genetic disease, with many patients unable to access medical care. Looking to pay it forward, Atty. JP began to ride his bike across the Philippines, sometimes more than 2,000km, to provide medicines and treatments for those who cannot afford it.

Through his efforts, Atty. JP also hopes to educate more people about XDP, encouraging patients to seek expert care and to work actively with SCF and CCXDP to further research studies, so that XDP can end with this generation.