Care initiatives and programs

From raising pigs to learning new skills, we provide our patients with the means to continue supporting their families.

Beyond the physical toll of XDP, we recognize the mental strain of this affliction and offer support through psychological counseling.

Our genetic counselors work to help screen, diagnose, and guide patients and their families who are adapting to the new implications of XDP.

Looking to give guidance and support, our expert therapists help patients’ families overcome the challenges of XDP together.

We work with a team of dedicated community advocates, who oversee XDP patients within their assigned areas, serving as the link between doctors and patients.

We provide our patients with the nutritional guidance they need to strengthen their bodies on the road to recovery.

Aiming to ensure medical care for all XDP patients, we are committed to providing much needed medicines and treatments.

Among our latest medical care goals is to provide more access to DBS, a brain implant operation found to manage XDP symptoms more effectively.

Hoping to lessen the economic burden of dealing with XDP, we offer financial assistance, so patients and their families can focus on recovery and overall well-being.

We strive to raise awareness for XDP, debunking myths, so patients and communities can move past stigmas and stereotypes, and instead focus on healing.